The language of endometriosis pain

Hilary Mantel, when describing the pain caused by her endometriosis in Giving up the Ghost…..‘there was a pain behind my diaphragm, and from time to time something seemed to flip over and claw at me, as if I were a woman in a folk tale, pregnant with a demon.’ (page 11).

If you have endometriosis and suffer from pain, please leave a description of your pain, or email it to The aim of this project is to find ways to improve communication practices about the condition.