Pain communication questionnaire

Please help us distribute and complete this pain communication questionnaire. It will only take a couple of minutes. Thanks very much.



Volunteers for interviews

We are looking for volunteers to run a series of interviews and focus groups in the Greater Manchester area. If you suffer from Endometriosis, or know someone who does, please help us with our project by participating in an interview. You can choose to be either part of a group or take part in an individual interview. You will be asked to discuss your experience and journey through the condition. It will take a maximum of an hour and it will make an enormous contribution to this project which aims to find ways to improve communication about Endometriosis. If you would like to get involved, please email me on Thank you very much.

The language of endometriosis pain

Hilary Mantel, when describing the pain caused by her endometriosis in Giving up the Ghost…..‘there was a pain behind my diaphragm, and from time to time something seemed to flip over and claw at me, as if I were a woman in a folk tale, pregnant with a demon.’ (page 11).

If you have endometriosis and suffer from pain, please leave a description of your pain, or email it to The aim of this project is to find ways to improve communication practices about the condition.